Belyaletdinov R. R., Grebenshchikova E. G., Kiyashchenko L. P., Popova O. V., Tishchenko P. D., Yudin B. G. Socio-humanitarian Support for Projects in Personalized Medicine: The Philosophical Aspect
(The Institute of Philosophy, RAS),
(The Russian Foundation for the Humanities,
Pirogov Russian National Research Medical University),
(The Russian Foundation for the Humanities),
(The Institute of Philosophy, RAS; Scientific Center of Children's Health, RAMS),
(The Institute of Philosophy, RAS),
(The Institute of Philosophy, RAS; Moscow University for the Humanities)
Abstract ♦ The article deals with the philosophical aspects of social and humanitarian support (SHS) of innovative projects in the field of personalized medicine (PM). PM is based on the latest advances in molecular biology (genomics, proteomics, metabolomics) and bioinformatics. It aims to develop individualized (personalized) methods of accurate prediction and prevention of potential disease with active participation of patients (or clients). By their very nature, PM projects are not only biomedical, but social and humanitarian as well. Successful implementation of PM paradigm in healthcare system depends on SHS, i.e. on solving of a wide range of ethical, legal, social, economic, political, and other problems.
Theoretical underpinnings of the SHS has been developed by the authors in their studies of the role of socio-humanitarian technologies in biology and medicine (e.g., bioethics and humanitarian expertise); of modern concepts of personality, including those of personalization, personification and individualization; of PM as a kind of foresight projects (at individual, family, group and national levels); of ethical and political procedures of social justice and individual autonomy of PM subjects; of the concept of innovation that combines traditional administrative implementations of innovation and the widespread use of modern social and humanitarian technologies, which ensure that PM stakeholders arise as subjects of health care, education, politics, business, science, industry, thus promoting their cooperation through education, use of social technologies, fundraising, outsourcing, transfer of knowledge and skills, etc.
SHS is a necessary precondition for the society’s acceptance of PM as a new medical paradigm and acts as a guarantee that the most complex problems that society faces will be diagnosed and overcome. As every human achievement, PM will inevitably come at a certain price. Monitoring its possible positive and negative socio-humanitarian implications must thus become a crucial aspect of SHS.
Keywords: social and humanitarian support, bioethics, humanitarian expertise, personalized medicine, personification, individualization, predictive medicine, preventive medicine, participatory medicine, foresight projection, autonomy of the person, justice, socio-humanitarian technologies.
Belyaletdinov Roman Rifatovich, Junior Research Fellow, Department of Humanitarian Expertise and Bioethics, Institute of Philosophy, Russian Academy of Sciences. Postal address: Bldg.5, 14 Volkhonka St., Moscow, Russian Federation, 119991. Tel.: +7 (495) 697-90-67. E-mail:
roman_rb@iph.ras.ru
Grebenshchikova Elena Georgievna, Doctor of Philosophy, Senior Specialist, Department of Social Sciences, Russian Foundation for the Humanities; Associate Professor, Department of Bioethics, N. I. Pirogov Russian National Research Medical University. Postal address: 17 Presnensky val St., Moscow, Russian Federation, 123557. Tel.: +7 (499) 702-85-54. E-mail:
aika45@ya.ru
Kiyashchenko Larisa Pavlovna, Doctor of Philosophy, Deputy Director, Department of Social Sciences, Russian Foundation for the Humanities. Postal address: 17 Presnensky val St., Moscow, Russian Federation, 123557. Tel.: +7 (499) 702-85-54. E-mail:
larisaki@yasenevo.ru
Popova Olga Vladimirovna, Candidate of Philosophy, Senior Research Fellow, Department of Humanitarian Expertise and Bioethics, Institute of Philosophy, Russian Academy of Sciences; Senior Research Fellow, Scientific Center for Children’s Health, Russian Academy of Medical Sciences. Postal address: Bldg.5, 14 Volkhonka St., Moscow, Russian Federation, 119991. Tel.: +7 (495) 697-90-67. E-mail:
j-9101980@yandex.ru
Tishchenko Pavel Dmitrievich, Doctor of Philosophy, Head, Department of Humanitarian Expertise and Bioethics, Institute of Philosophy, Russiаn Academy of Sciences. Postal address: Bldg.5, 14 Volkhonka St., Moscow, Russian Federation, 119991. Tel.: +7 (499) 697-90-67. E-mail:
p.tishchenko@yahoo.com
Yudin Boris Grigorievich, Doctor of Philosophy, Professor and Chief Research Fellow, Department of Humanitarian Expertise and Bioethics, Institute of Philosophy, Russian Academy of Sciences; Director, Center for Bioethics, Institute of Fundamental and Applied Studies, Moscow University for the Humanities; Corresponding Member, Russian Academy of Sciences. Postal address: Bldg.5, 14 Volkhonka St., Moscow, Russian Federation, 119991. Tel.: +7 (499) 697-90-67. E-mail:
byudin@yandex.ru
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